Juanita Lint was diagnosed with Essential Tremors more than 15 years ago. As someone who had worked in high-level leadership positions, she found it frustrating to lead meetings or speak in front of...
Juanita Lint was diagnosed with Essential Tremors more than 15 years ago. As someone who had worked in high-level leadership positions, she found it frustrating to lead meetings or speak in front of...
By Harold (Hal) Thiemann I was diagnosed with Essential Tremors (right side dominant) by my primary care provider in June of 2012 and prescribed Propranolol. The tremors got progressively worse with...
A community activist and long-term participant of the AADAPt study reflects upon her experience together with her daughter....
Sometimes you realize that another person’s journey is as complex and vivid as your own. When three caregivers enrolled in the virtual TeleSTELLA study last fall, they didn’t expect to realize...
What can you do with your lived experience and expertise? For Sherril Gelmon, being a health services researcher, a research study partner, and a care partner for many years inspired her to donate to...
As the holidays approach, many of us look forward to traveling to visit friends and family. Many families ask me about traveling with family members with dementia. Here are my top tips....
By Mykola Zubko, MA Suicide Prevention Program Development Practicum Student at OHSU/Portland VA When is the last time you felt like a person? For some of us, it was probably recent in...
Last year a new group of research advocates came together to try and solve an issue: how do we get more participants from diverse communities involved in research studies? Since last September,...
As the lead of Outreach, Recruitment and Engagement at the Layton Aging and Alzheimer’s Disease Center, I often meet people who want to donate to our center. We are dependent on families like the...
Enrolling in a caregiver research study at OHSU inspired Douglas and Jane Grube to reflect upon their life goals and make some important decisions....