Juanita Lint was diagnosed with Essential Tremors more than 15 years ago. As someone who had worked in high-level leadership positions, she found it frustrating to lead meetings or speak in front of...
A community activist and long-term participant of the AADAPt study reflects upon her experience together with her daughter....
Sometimes you realize that another person’s journey is as complex and vivid as your own. When three caregivers enrolled in the virtual TeleSTELLA study last fall, they didn’t expect to realize...
For the past 10 years, I have had the privilege of leading a support group for family caregivers of persons with frontotemporal dementia (FTD) and related disorders. The group’s creation was...
A demoralizing effect of Alzheimer’s disease and similar dementias is the gradual loss of ability to engage in enjoyable and meaningful activities. This loss affects the whole family and can lead...