Eleanor’s cleft story
Three-year-old Eleanor was born with cleft lip and palate and has had two surgeries to repair it. We sat down with Eleanor’s mom, Elizabeth, to learn more about their family’s cleft journey at...
Haley’s craniosynostosis journey
When she was a few months old, Haley was diagnosed with a condition called unicoronal craniosynostosis. Haley, who is now 13 months old, had surgery at OHSU Doernbecher this spring and is finishing...
Jackson’s retinoblastoma story
When he was 9 months old, Jackson was diagnosed with bilateral retinoblastoma (a type of eye cancer that begins in the retina). We sat down with Jackson’s parents, James and Kaitlyn, to learn more...
On this journey together: Cece’s heart story
After a prolonged NICU stay, Cecilia (better known as “Cece”) received a diagnosis of pulmonary vein stenosis (PVS), a rare cardiovascular condition. Over the next few months, Cece underwent two...
Navigating grief during the holiday season
In the coming days and weeks, many families are either celebrating or preparing for Hanukkah, the winter solstice, Christmas, Kwanzaa and the new year. The holiday season centers hope, joy,...
Chasing fearless: Matt’s marathon story
Matt Pozsgai celebrated his 28th birthday by running from his home in Salmon Creek, Washington, to the front doors of OHSU Doernbecher Children’s Hospital. Each step of the 27-mile trek was filled...
2022 Gifts for good
We depend on our community to help make the holidays special for kids and families, and your generosity makes an enormous difference. If you’re in a position to support OHSU Doernbecher...
Supporting children in their grief
Loss is a normal and inevitable part of the human experience, but when it comes to supporting children in their grief, it can be hard to know where to begin. This month, OHSU Doernbecher staff join...
The little girl who could: Charlie’s cleft story
Charlie was born with a craniofacial disorder called complete unilateral cleft lip and palate. Now 13 months old, Charlie has undergone several procedures and surgeries to correct her cleft. We sat...
Transitioning to adult CHD care: Elizabeth’s heart story
Gaining independence with managing one’s own medical care is a process that most people must experience as they become adults. For those who receive specialty care, the process – called...