On this journey together: Cece’s heart story
After a prolonged NICU stay, Cecilia (better known as “Cece”) received a diagnosis of pulmonary vein stenosis (PVS), a rare cardiovascular condition. Over the next few months, Cece underwent two...
Category: Cardiology
Transitioning to adult CHD care: Elizabeth’s heart story
Gaining independence with managing one’s own medical care is a process that most people must experience as they become adults. For those who receive specialty care, the process – called...
Ezra’s Doernbecher Story
Ezra and his mom, Andra, have been “frequent flyers” at Doernbecher since 2019, when Ezra was diagnosed in utero with a congenital heart defect (CHD) called hypoplastic left heart syndrome...
Ashlynn’s Doernbecher Story
When she was 5 years old, Ashlynn was diagnosed with pulmonary arterial hypertension, which is when there is high pressure in the pulmonary artery and lungs, causing the right heart to work harder....
Get to know Dr. Yoshio Otaki
OHSU Doernbecher Children's Hospital and the OHSU Division of Cardiothoracic Surgery are excited to welcome Dr. Yoshio “Yoshi” Otaki to our Pediatric and Congenital Cardiac Surgery team. Dr....
The heart of kings: Kingston’s Doernbecher story
Kingston was born with a congenital heart defect (CHD) called hypoplastic left heart syndrome (HLHS). Today, he’s almost 6 years old and is coming up on the one-year anniversary of a heart...
Sports physicals make sure your child can safely compete – or skate, bike, ski and hike – this year
In Oregon, sports physicals are required every two years for children to compete in school athletics or organized sports. But there’s more to these exams than checking the required boxes before...
Every sneaker has a story
2019 was a big year for Ethan Ellis: he got a new heart, and he designed a Nike sneaker. Ethan was born with a congenital heart defect called hypoplastic left heart syndrome. He underwent three...
Finding community at camp
Twelve-year-old Alijah was born with a congenital heart defect called hypoplastic left heart syndrome (HLHS). He’s been treated at OHSU Doernbecher Children’s Hospital since he was born, and has...
Team Axel: taking on Pompe disease together
Every week, a small blond boy walks through the double doors of OHSU Doernbecher Children’s Hospital’s hematology oncology clinic. It’s Axel, and he’s here for his “muscle juice” (an...