Side-by-side photos of smiling baby wearing nasal cannula and holding stuffed animal. Photo of same baby with two smiling adults, all three wearing sunglasses.

On this journey together: Cece’s heart story

After a prolonged NICU stay, Cecilia (better known as “Cece”) received a diagnosis of pulmonary vein stenosis (PVS), a rare cardiovascular condition. Over the next few months, Cece underwent two...

Side-by-side photos of girl in hospital bed and a young adult in a hospital bed.

Transitioning to adult CHD care: Elizabeth’s heart story

Gaining independence with managing one’s own medical care is a process that most people must experience as they become adults. For those who receive specialty care, the process – called...

Two side-by-side photos, one with a smiling infant and the other the same baby in his mother's arms, touching her face

Ezra’s Doernbecher Story

Ezra and his mom, Andra, have been “frequent flyers” at Doernbecher since 2019, when Ezra was diagnosed in utero with a congenital heart defect (CHD) called hypoplastic left heart syndrome...

Ashlynn’s Doernbecher Story

When she was 5 years old, Ashlynn was diagnosed with pulmonary arterial hypertension, which is when there is high pressure in the pulmonary artery and lungs, causing the right heart to work harder....

Side-by-side photos of someone running a race and reaching for high fives. The other photo is a headshot of the same person in a suit and tie.

Get to know Dr. Yoshio Otaki

OHSU Doernbecher Children's Hospital and the OHSU Division of Cardiothoracic Surgery are excited to welcome Dr. Yoshio “Yoshi” Otaki to our Pediatric and Congenital Cardiac Surgery team. Dr....

Selfie of smiling child and adult, both lying on a hospital bed

The heart of kings: Kingston’s Doernbecher story

Kingston was born with a congenital heart defect (CHD) called hypoplastic left heart syndrome (HLHS). Today, he’s almost 6 years old and is coming up on the one-year anniversary of a heart...

Left: Young man holding blue, purple, gold and black Air Jordan 14 Retro sneaker. Right: Same person, older, holding the sneaker and standing in a bedroom. Football jersey behind him reads "Ellis #39."

Every sneaker has a story

2019 was a big year for Ethan Ellis: he got a new heart, and he designed a Nike sneaker. Ethan was born with a congenital heart defect called hypoplastic left heart syndrome. He underwent three...

A young child and his mother stand side-by-side, smiling, in front of a camp cabin

Finding community at camp

Twelve-year-old Alijah was born with a congenital heart defect called hypoplastic left heart syndrome (HLHS). He’s been treated at OHSU Doernbecher Children’s Hospital since he was born, and has...

Team Axel: taking on Pompe disease together

Every week, a small blond boy walks through the double doors of OHSU Doernbecher Children’s Hospital’s hematology oncology clinic. It’s Axel, and he’s here for his “muscle juice” (an...