Team Axel: taking on Pompe disease together
Every week, a small blond boy walks through the double doors of OHSU Doernbecher Children’s Hospital’s hematology oncology clinic. It’s Axel, and he’s here for his “muscle juice” (an...
Category: Cardiology
Heart restart
Playful fitness is possible for kids with heart conditions For parents of children who live in the shadow of a congenital heart problem, even simple activities can cause a knot of anxiety. Even...
Matters of the heart
This article was written by Scott Henjum and originally appeared in the Portland Monthly 2017 Kids’ Health Annual magazine. To test or not to test? Parents of teen athletes face this...
Triple threat: The lasting effects of the female athlete triad
This article was written by Carin Moonin and originally appeared in the Portland Monthly 2016 Kids’ Health Annual magazine. The 1972 passage of Title IX, a federal law that prevents...
Under pressure: For kids with hypertension, the time to make changes is now
This article was written by Megan Haverman and originally appeared in the Portland Monthly 2016 Kids’ Health Annual magazine. While in the past high blood pressure in children has usually been...
Merry Heart: a camp with its own beat
Tim LaBarge serves on the board of Merry Heart Children's Camp. He's also a photographer in Portland. Below, he shares some special moments and memories from Merry Heart Children's Camp....
An important message from Doernbecher Freestyle patient-designer Jacob
Hello! It’s Doernbecher Freestyle patient-designer Jacob Burris here. My shoe designs are coming along great. I hope that they are going to blow your minds!!! I wanted to share a little...
Jacob’s heart story
Below, Janice Burris shares her son’s Doernbecher story. Thirteen-year-old Jacob is one of our 2015 Doernbecher Freestyle patient-designers, and he’ll be following up next week with a post of his...
New heart defibrillator is game-changer for tweens, teens with heart arrhythmia
This week the pediatric cardiovascular team at OHSU Doernbecher Children’s Hospital, in cooperation with the OHSU Knight Cardiovascular Institute, made history by implanting a first-of-its kind...
What parents should know about childhood palpitations, abnormal heartbeats
Unpleasant sensations of fast or forceful heartbeats are called palpitations. Young children with palpitations usually tell their parents that their heart is “beeping” or “going crazy” or...