Left: Young man holding blue, purple, gold and black Air Jordan 14 Retro sneaker. Right: Same person, older, holding the sneaker and standing in a bedroom. Football jersey behind him reads "Ellis #39."

Every sneaker has a story

2019 was a big year for Ethan Ellis: he got a new heart, and he designed a Nike sneaker. Ethan was born with a congenital heart defect called hypoplastic left heart syndrome. He underwent three...

A young child and his mother stand side-by-side, smiling, in front of a camp cabin

Finding community at camp

Twelve-year-old Alijah was born with a congenital heart defect called hypoplastic left heart syndrome (HLHS). He’s been treated at OHSU Doernbecher Children’s Hospital since he was born, and has...

Team Axel: taking on Pompe disease together

Every week, a small blond boy walks through the double doors of OHSU Doernbecher Children’s Hospital’s hematology oncology clinic. It’s Axel, and he’s here for his “muscle juice” (an...

Heart restart

Playful fitness is possible for kids with heart conditions For parents of children who live in the shadow of a congenital heart problem, even simple activities can cause a knot of anxiety. Even...

Matters of the heart

This article was written by Scott Henjum and originally appeared in the Portland Monthly 2017 Kids’ Health Annual magazine. To test or not to test?  Parents of teen athletes face this...

Triple threat: The lasting effects of the female athlete triad

This article was written by Carin Moonin and originally appeared in the Portland Monthly 2016 Kids’ Health Annual magazine.   The 1972 passage of Title IX, a federal law that prevents...

Merry Heart: a camp with its own beat

Tim LaBarge serves on the board of Merry Heart Children's Camp. He's also a photographer in Portland. Below, he shares some special moments and memories from Merry Heart Children's Camp....