Yoshi gets a “Yoshi valve” from Dr. Yoshi
Yoshua (better known as “Yoshi”) was born with a double diagnosis of Trisomy 21 (Down Syndrome) and a congenital heart defect called Tetralogy of Fallot. Now 13, Yoshi receives care at OHSU...
Category: Parenting
Eleanor’s cleft story
Three-year-old Eleanor was born with cleft lip and palate and has had two surgeries to repair it. We sat down with Eleanor’s mom, Elizabeth, to learn more about their family’s cleft journey at...
Haley’s craniosynostosis journey
When she was a few months old, Haley was diagnosed with a condition called unicoronal craniosynostosis. Haley, who is now 13 months old, had surgery at OHSU Doernbecher this spring and is finishing...
On this journey together: Cece’s heart story
After a prolonged NICU stay, Cecilia (better known as “Cece”) received a diagnosis of pulmonary vein stenosis (PVS), a rare cardiovascular condition. Over the next few months, Cece underwent two...
Navigating grief during the holiday season
In the coming days and weeks, many families are either celebrating or preparing for Hanukkah, the winter solstice, Christmas, Kwanzaa and the new year. The holiday season centers hope, joy,...
Supporting children in their grief
Loss is a normal and inevitable part of the human experience, but when it comes to supporting children in their grief, it can be hard to know where to begin. This month, OHSU Doernbecher staff join...
The little girl who could: Charlie’s cleft story
Charlie was born with a craniofacial disorder called complete unilateral cleft lip and palate. Now 13 months old, Charlie has undergone several procedures and surgeries to correct her cleft. We sat...
Family health to-dos for the fall season
Is your family settled into your fall routine yet? Before things get too hectic, take some time to take care a few important health-related tasks – doing so now will help prepare you (and your...
Creating a balanced plate: Understanding teens’ nutrition needs
Teenagers navigate many different stressors that can impact their eating habits, and their nutritional needs are very different from those of younger children or adults. We sat down with clinical...
A forever smile: Oliver’s Doernbecher story
Seven-month-old Oliver was born with cleft lip, a craniofacial disorder that occurs when the tissues that form a baby’s mouth and lips do not align. He had his repair surgery nearly two months ago....