Infant with cleft lip wrapped in blanket, baby smiling with two parents holding her

The little girl who could: Charlie’s cleft story

Charlie was born with a craniofacial disorder called complete unilateral cleft lip and palate. Now 13 months old, Charlie has undergone several procedures and surgeries to correct her cleft. We sat...

Side-by-side photos of girl in hospital bed and a young adult in a hospital bed.

Transitioning to adult CHD care: Elizabeth’s heart story

Gaining independence with managing one’s own medical care is a process that most people must experience as they become adults. For those who receive specialty care, the process – called...

Mother holding baby with a cleft lip

A forever smile: Oliver’s Doernbecher story

Seven-month-old Oliver was born with cleft lip, a craniofacial disorder that occurs when the tissues that form a baby’s mouth and lips do not align. He had his repair surgery nearly two months ago....

Two side-by-side photos, one with a smiling infant and the other the same baby in his mother's arms, touching her face

Ezra’s Doernbecher Story

Ezra and his mom, Andra, have been “frequent flyers” at Doernbecher since 2019, when Ezra was diagnosed in utero with a congenital heart defect (CHD) called hypoplastic left heart syndrome...

Ashlynn’s Doernbecher Story

When she was 5 years old, Ashlynn was diagnosed with pulmonary arterial hypertension, which is when there is high pressure in the pulmonary artery and lungs, causing the right heart to work harder....

Selfie of smiling child and adult, both lying on a hospital bed

The heart of kings: Kingston’s Doernbecher story

Kingston was born with a congenital heart defect (CHD) called hypoplastic left heart syndrome (HLHS). Today, he’s almost 6 years old and is coming up on the one-year anniversary of a heart...

A smiling baby in a high chair wearing a felt crown touches his mom's face as she crouches beside him.

Tiny big moments: the story behind Foxbox

It all started with a baby and his fox.  In July of 2019, Cypress had just turned 4 months old. His pediatrician sent him to the OHSU Doernbecher Emergency Department, where his mom, Kat,...

A toddler sits on a red tractor seat. The tractor is on a wooden platform and attached with a chain.

Embracing Compassion, building community

Every Saturday, children affected by pediatric cancer and their families gather at a small farm in Sherwood, Oregon. On Sundays, local community members come together to do farm maintenance and help...

Left: Young man holding blue, purple, gold and black Air Jordan 14 Retro sneaker. Right: Same person, older, holding the sneaker and standing in a bedroom. Football jersey behind him reads "Ellis #39."

Every sneaker has a story

2019 was a big year for Ethan Ellis: he got a new heart, and he designed a Nike sneaker. Ethan was born with a congenital heart defect called hypoplastic left heart syndrome. He underwent three...

A young child and his mother stand side-by-side, smiling, in front of a camp cabin

Finding community at camp

Twelve-year-old Alijah was born with a congenital heart defect called hypoplastic left heart syndrome (HLHS). He’s been treated at OHSU Doernbecher Children’s Hospital since he was born, and has...