Left: Young man holding blue, purple, gold and black Air Jordan 14 Retro sneaker. Right: Same person, older, holding the sneaker and standing in a bedroom. Football jersey behind him reads "Ellis #39."

Every sneaker has a story

2019 was a big year for Ethan Ellis: he got a new heart, and he designed a Nike sneaker. Ethan was born with a congenital heart defect called hypoplastic left heart syndrome. He underwent three...

A young child and his mother stand side-by-side, smiling, in front of a camp cabin

Finding community at camp

Twelve-year-old Alijah was born with a congenital heart defect called hypoplastic left heart syndrome (HLHS). He’s been treated at OHSU Doernbecher Children’s Hospital since he was born, and has...

A smiling baby wearing a handkerchief and sitting in a stuffed chair.

Navigating sickle cell disease: Isaiah’s story

The Diagnosis August 8, 2018. Two weeks to the day of Isaiah’s birth, as promised. OHSU is calling me. First ring. I know what this is. It is the results of his newborn screening. Second...

Team Axel: taking on Pompe disease together

Every week, a small blond boy walks through the double doors of OHSU Doernbecher Children’s Hospital’s hematology oncology clinic. It’s Axel, and he’s here for his “muscle juice” (an...

OCD to me: It takes courage

Eighteen-year-old Ryan Bernstein is a youth advocate for Obsessive Compulsive Disorder (OCD), having lived with it for many years. He is the author of "OCD to Me: An Anthology of Anxieties," and he's...

Returning to the OR: Alyssa’s Doernbecher story

We sat down with OHSU School of Nursing student Alyssa to learn why she is pursuing a career in nursing. Read her story in her own words below!   My symptoms started when I was about 7...

2016 in review: Doernbecher’s top stories

Safety first! Tips and tricks to keep kids safe and healthy reigned supreme on our blog this year – from Pokémon GO to laundry detergent packets. At OHSU Doernbecher Children's Hospital, we are...

Braylin’s Doernbecher story

When she was 8 years old, Braylin Soon was diagnosed with Autoimmune Hepatitis and underwent an emergency liver transplant. We sat down with her parents, Kevin and Delinah, to learn more about...

Advocating for hope: Chehayla’s Doernbecher story

Ten years ago, Doernbecher patient Chehayla Hyatt was diagnosed with Cystic Fibrosis. Over the years, Chehayla and her family have dedicated their efforts to raising awareness about CF and its impact...