Eleanor’s cleft story
Three-year-old Eleanor was born with cleft lip and palate and has had two surgeries to repair it. We sat down with Eleanor’s mom, Elizabeth, to learn more about their family’s cleft journey at...
Category: Patient story
Haley’s craniosynostosis journey
When she was a few months old, Haley was diagnosed with a condition called unicoronal craniosynostosis. Haley, who is now 13 months old, had surgery at OHSU Doernbecher this spring and is finishing...
On this journey together: Cece’s heart story
After a prolonged NICU stay, Cecilia (better known as “Cece”) received a diagnosis of pulmonary vein stenosis (PVS), a rare cardiovascular condition. Over the next few months, Cece underwent two...
Chasing fearless: Matt’s marathon story
Matt Pozsgai celebrated his 28th birthday by running from his home in Salmon Creek, Washington, to the front doors of OHSU Doernbecher Children’s Hospital. Each step of the 27-mile trek was filled...
The little girl who could: Charlie’s cleft story
Charlie was born with a craniofacial disorder called complete unilateral cleft lip and palate. Now 13 months old, Charlie has undergone several procedures and surgeries to correct her cleft. We sat...
Transitioning to adult CHD care: Elizabeth’s heart story
Gaining independence with managing one’s own medical care is a process that most people must experience as they become adults. For those who receive specialty care, the process – called...
A forever smile: Oliver’s Doernbecher story
Seven-month-old Oliver was born with cleft lip, a craniofacial disorder that occurs when the tissues that form a baby’s mouth and lips do not align. He had his repair surgery nearly two months ago....
Ezra’s Doernbecher Story
Ezra and his mom, Andra, have been “frequent flyers” at Doernbecher since 2019, when Ezra was diagnosed in utero with a congenital heart defect (CHD) called hypoplastic left heart syndrome...
Ashlynn’s Doernbecher Story
When she was 5 years old, Ashlynn was diagnosed with pulmonary arterial hypertension, which is when there is high pressure in the pulmonary artery and lungs, causing the right heart to work harder....
The heart of kings: Kingston’s Doernbecher story
Kingston was born with a congenital heart defect (CHD) called hypoplastic left heart syndrome (HLHS). Today, he’s almost 6 years old and is coming up on the one-year anniversary of a heart...